i've been a little fragile lately [well "a little fragile" would have to be the biggest underestimation in the world, "all consumed" might be a more accurate description], since we found out that our little twin B was diagnosed with a heart condition. we have a known for a few months now & had lots of tests & appointments. frankly, i haven't felt ready to share. it has taken a long time to absorb, conduct my own research & feel ready to discuss it. we had our last lot of testing today before they arrive so now is a good time as any to record whats happening...
i won't go into specifics, much of it won't be fully determined until she arrives & undergoes further testing. it will be a very emotional & tense time & needless to say, with babies in ICU & more than likely special care, early visitors will be restricted. i'll need lots of space for jeff & my other girls to spend the little quality time we can with our special newborns as a family, before possible trips to melbourne.
we have been reassured that she is more than likely going to be fine and have a good long term outlook BUT yes, she will require corrective open heart surgery in melbourne, possibly straight away then another a year down the track. the whole thing is terrifying really.
life has certainly delivered us some curve balls so far but jeff & i are strong & ready to fight. i have to believe that we are given these challenges because we can handle them. i do wish though, that i could take on the surgery for her. i'm an old hand at it & i like to think surgery is a piece of cake!!!! i am hoping with all my being that she can conquer this hurdle on her own & fight on to enjoy life with her adoring parents & 3 sisters. if she's anything like her mother [that would be me] then she WILL take it head on and she'll come through it stronger & more determined to live a great full life.
i think that's all i have to say at this point.
kate
xo
