my cheeky monkeys, chels [L] & millie [R] looking cute & healthy!
they look up to something... are they keeping secrets from mummy?
i've been wallowing alot lately but today for some reason i feel super strong. she looks too well and is SO spirited & feisty that she'll surely blitz this next operation! i can't contemplate any other option today. feeling strong, she looks strong, she's gotta be here longer than this, surely? my little sweetheart....
in this operation, it is planned that she will have a repair. a repair for someone with dorv, ps, 4 vsd's and an aneurysm, is:
1] dorv [double outlet right ventricle]: she will have the aorta plumbed back to the left ventricle where it should be.
2] ps [pulmonary stenosis] they will have a look at her mis-firing valve and see if they can do anything, if not, ongoing valve replacements will be done throughout life as needed, maybe every 10-15 years.
3] 4 vsd's [ventricular septal defects= holes] to be patched.
4] aneurysm to be drained and stitched off.
its huge, she'll be on heart/lung bypass throughout her several hour surgery. ok, not feeling so invincible now. every day we wait for the surgery, is full of mixed emotions. it's another day of fear & dreading but it's also another day with her. it's so hard. we want the surgery behind us, but we don't want to wish time away in case...
they are also bumping adelaide patients away from melbourne right now due to shortage of icu beds and specially trained nurses. it's horrific living in this moment not even able to make any plans for the surgery date we have been approved for. we just have to wait. all we can do is enjoy her each day and try remain calm as possible. i tell you this is testing me in every way imaginable. if we get through to the other side with our family intact, well i am going to feel... i just cannot describe how i will feel, there are no words. elated x 100 trillion, that might be something in the right direction...
dear readers, if you are the praying kind or don't mind making a little wish for chelsea's surgery to be a success and for us to have her back home safe with us, i would really appreciate it. i hate to ask for help for myself, but i would jump off tall buildings for all 4 of my girls so, tail between my legs, here i am. i need everything to go her way, everything to be on our side, to have her jump this enormous hurdle and for her to enjoy life with us for many more years to come.
she is just so little and beautiful and precious. her personality is infectious, i know everyone would fall in love with her. her sisters [including her twin] love her so much already, they need her. we need her.
ok, i'm gonna have to distract myself now so off to the art desk.
kate
xo
edited: transferred from Heartkids family blog to KateMason.blogs.com August2011
